Present Experience: My Daily Journal

Friday, April 30, 2010

30 April 2010 worldballons.blogspot.com

Hello Wonderful World,

How are you all? It's a warm but rainy day here in Denmark.No gym for me today.It was a public holiday.I went out to visit some friends.Now I'm back home resting.I decided to rest the whole weekend and on Monday back to gym.I feel like I sleep much less then before.There is not much to tell today.I hope we will get a sunny weekend,So we can enjoy the sun.Wish you all the best.Have a great weekend.

Everyone be happy, Enjoy life, because...... It's Wonderful

Wednesday, April 28, 2010

28 april 2010 worldballons.blogspot.com

Hellllo Awesome World,

O.M.G.--- my every muscle from big to small is hurting.Today ,I went to the gym on the scooter and I was  able to spend  one hour and 10 minutes at gym doing exercise and was still be able to drive back to home on my scooter.It's much more than before the liberation.I have divided my gym routine into two parts.One is , I train my shoulders and arms  two times in a week & in Second part i train my legs ,my back and my balance three times in a week.

Now, Lets see how much this training will help me.I have also started to change my eating habits Eating alot of beans & nuts and stuff which gives alot of energy.I also eat meat,Fish and alot of green stuff.I remember all my vitamins.I am trying to be healthy from inside as well as the outside.

I am looking forward this weekend,so I can relax and hopefully i will also take some sun bath & i have decided to do something,which I haven't done for a long time. The past one year all my girl friends come over at my place and I not visit them even at once,Always because of the stairs.But Friday 7th of May,I am invited to a " Pyjama's Party " at my sister's place.Even though they have 5 to 6 stairs,but I said yes,I agree to join them.
Everyone be happy, Enjoy life, because...... It's Wonderful

Monday, April 26, 2010

News of the Day - Worldballons.


26th April 2010 ( worldballons.blogspot.com )

Hello Awesome World,

I Hope you all had a great weekend and enjoyed it,like I did.Here all weekend we had very good sun-shine.So I use the time to sun-bath & spent every minute with my love one's & at the same time I spent some time  for my self alone to think about Me, Life,World ,the galaxy & this ugly ugly ugly disease MS.

Everyday i feel like this liberation has given me a new energy, Some times physically and some times mentally.But if i go back and think about it mentally,before the liberation MS was like a bad circle because it never had an End.There was so difficult to see any light by the end of the tunnel.But right now i can see it like a straight line with alot of light in the end.This is  my mentally view of this and  now the physically view.The work-out made my body tight and it hurts a little bit because it will take some time  to get use to it.But at the same time i feel great. Like I am starting a whole new chapter in my life.I also want to change my eating habits.So when i work-out i have more energy :) . Come-on World  i want that Tweety bag so badlllly . So I need to do all of this to get closer to that hand-bag. :)

Everyone be happy, Enjoy life, because...... It's Wonderful

Thursday, April 22, 2010



22nd April 2010

Hello World,

We had another day with happy sun in Denmark.

I think the air traffic starts working at some place from today.I'm exhausted, there has been a lot of exercise in this week.So now I'm half dead.The good thing is tomorrow I only need to stretch out. Slowly I can see some changes in my body.Like my bladder is working much better.I have much more energy,and my balance is good now.So after all I can see some small changes ,which increase day by day.I also feel that I get more appetite and I started tasting stuff much better.The aroma of food is getting better.If the good weather continues,I have decided to go to gym on my scouter. That could be challenging,all alone on the road me and the scouter.I am not worried about it but I think everyone else is worried. :) Come on people,life is too short to be worried about stuff like this.
Yesterday, Me and The Administrator Kamran used our time on putting some of my favourite music in a play-list on Home page.So may be you guys can also find  some of your favourite songs in that play-list.

You all stay happy & enjoy life .... Because  it's wonderful.

Tuesday, April 20, 2010

20th April 2010

Hello World,

This is the beginning of a wonderful week with an awesome weather,and I am just enjoying it.
I was at the gym this morning. I exercise for 30 minutes,and I will say that  I felt like I can exercise more.It's an awesome feeling that you can exercise more without feeling tired or sleepy. God it felt good but at the same time it was a little bit painful.From next week,I will work out 5 days in a week.Lets see how it goes,I think I will look like Arnold Schwarzenegger in the end of all this gym thing.I have a theory which might explain that why I felt heavy for a couple of days.But I need to check with Dr. K . My theory is " I stop using injections around 10 days ago.The injections made my blood thin.So therefore the blood flow in my body was real good. But after stopping the injections,my body needs to get use to my old blood, which is not as thin as like when I took the injections." .But I need to check it and I will come back to you guys.I will you all the best.Have a great week.

So everyone Stay Happy & Enjoy Life ... Because it's Wonderful.

Saturday, April 17, 2010

17th April 2010 MS news updates.



17th April 2010

Hello World,

How are you guys? I'm feeling good.My hands and feet are getting warm again.So I'm like hurry.I want to share something very positive with you guys.Today I experience something ,which put a smile on my lips and special warmness on my heart.I receive a message in my in my face-book in-box.The message was from an MS group.Which I am a part of.The message was " Please share any funny MS moments of yours with us. It's good to smile and laugh. Please post your stories on the group wall or on the discussions section.Thanks and have a great weekend! :0 )" . This message made me think and then I decided that I want to put smiles on soo many other faces today.There fore I will share one Funny MS moment with you guys.Hoping that you guys will do the same.I think we all need a good laugh.So here is my funny MS moment.

" It was around two and a half years ago. My left foot was just  started being heavy and acting weird.I had just bought some cute sandals which I really wanna wear & those were with very high heals.I was invited to a party.I was all dressed up and was wearing the new sandals.I thought this will go fine and nothing will happen.But  i was  wronnnnnng ,Big Time. The first issue was when I was entering inside the home. I didn't lift my  left foot up while I was going inside.My heal got struck on the door frame.Then I grab a guy shirt for not falling down. It was soo embarrassing because my entry was ruined .Then I walked through and find a chair to sit on and relax for sometime.Then a good song from " Dirty dancing " came & I had to dance with one of my friend.I couldn't lift my feet,So i was standing and dancing like a  Robot.So the whole night I was either sitting with my  pretty shoes or stud in a corner ,So no one can push me.Or if i was dancing my feet never came up.So that was the only time I used those pretty sandals."

So everyone this crazy story of mine made you guys smile.I also hope that you will also share your funny MS moments.
You all stay happy & enjoy life .... Because  it's wonderful.

Friday, April 16, 2010

MS patient describes life after Liberation Treatment


16th April 2010 ( Part -2)

Hello World once again,

Dr. Kostecki Called me back.His theory was I should wait a couple of days.Because may be my body is tired now.So I should relax and no more tension for next couple of days. So,we can see how it goes."This Doctor is so wonderful.He cares so much about his patients".That it's surprise me each time.I am hoping all the best ,So Enjoy your weekend everyone.

Study To Evaluate Treating Chronic Cerebrospinal Venous Insufficiency (CCSVI) in Multiple Sclerosis Patients

 Hello World once again,

 Another link for Study To Evaluate Treating Chronic Cerebrospinal Venous Insufficiency (CCSVI) in Multiple Sclerosis Patients.


16th April 2010

Hello World,

Sorry, I didn't wrote anything yesterday.But I was tired and a lot of stuff in my mind. I got a little bit chilly feet & a little bit heavy body.It made me afraid that is my Vein Blocked again? I am trying to call Poland.Now I'm waiting for Dr. Kostecki to call me back, because he is in surgery . So I'm waiting without any patience.
Now lets go to the good side of the story. I felt two changes in my body. Which I have noticed with the time. The first thing is " People around me tells me that I speak a little bit faster & I pronounce the words correctly." The second thing is my  sight " I feel like I am not blinking any-more  while taking a closer look at anything." So that means " Progress".Again one step closer to my " Goal"

Oh My God  I forgot to give you the weather report.The weather here in Denmark in sunny & probably rainy in London.I hope that you all will have a great weekend.

You all stay happy & enjoy life .... Because  it's wonderful.

Italian doctor defends controversial MS research


Wednesday, April 14, 2010

Latest News Updates about MS 14th April 2010

Here are several link where you can read about latest  updates about  Multiple Sclerosis.





14th April 2010

Hello World,

Here we have another sunny day in Denmark,We are beating the record of sunny days in Denmark.Today I made the lunch by my self. Without burning me or my food.Such a good feeling.May be it looks very small to a lot of people,but for us MS'er it's a big step.This is showing me that I can be a part of society again.I can do my own things without any help.
I am thinking about Tomorrow  ,Day after tomorrow & Future.Because If this progress continues,then why are neurologist are soo much against it? Is it because of their reputation? Or is it just all about The Money? More I think about it.More i want to spread about this breaking news . Because we deserve this. We deserve to be liberated.I don think that they can deny this for a long time.Because we are being good at spreading the news about CCSVI and it's progress. 

So everyone Stay Happy & Enjoy Life ... Because it's Wonderful.

Tuesday, April 13, 2010

13 April 2010 : This is my good friend Ginger

This is Ginger's Interview before & after Liberation.

13th April 2010

Good Afternoon World,

Today we had another sunny day here in Denmark.One of the days which I would love to run in the park,If I could.I am soo happy today because most of you guys has given me a good response on my blog.

www.msforum.dk has been nice enough to mention my blog and so many other places like Facebook & Twitter.Thank you all ,I really appreciate your kindness.I also really want that all of you join me on Facebook or twitter.Because I will periodically  send the updates  about my blog on Facebook and Twitter.I think like this we can fight the ugly MS, Able to spread the news about CCSVI and how we can get liberated.The liberation means lot to us  MS'er because this liberation gives us a new life with alot of new chances and opportunities.

Today I had my  first stretch out  physiotherapy . From next week my serious work-out will start.My physiotherapist told me " Mona it's much easier to work with your body right now & your body is not as much heavy as  it was before liberation." Before liberation  I  usually get tired  after 10 to 15 min  exercise.
Today it was around 25 min. I had still alot of energy left.

Everyone Stay Happy & Enjoy Life ... Because Life is Wonderful.

Monday, April 12, 2010

12th April 2010

Good Morning World,

Such a sunny day today.I think I am also becoming a weather reporter,because I tell the world about the weather almost everyday.Somewhere in this whole world  there must be a cloudy place but right now here in Denmark it's sunny.Today I shall share the experience which I had yesterday with me. 

"Yesterday I walked from my room to the wash room with my walker.There is more or less 3.5 meters. Before liberation I could only take 1 or 1.5 meter.That was awesome.I noticed last night,while I was sitting.I experience that  I was  sitting straight & my feet were also straight .Also my knees were straight too.There were no hanging shoulders."

I think slowly slowly the old  " MONA " is coming back. :)  So world be careful..It will probably take some time but it will come.I should keep reminding my self,that it took me some time to get on the wheelchair.Therefore it will also take some time to get rid of it.

Everyone Stay Happy & Enjoy Life ... Because Life is Wonderful.

Sunday, April 11, 2010

11th April 2010

Hello Everyone,

It's not so shiny outside the window today.Actually a little bit cloudy.And my mind is a little bit tired.My Notebook has been defected by an ugly Virus like ugly MS Disease hehehehehhe :D.So since yesterday afternoon I been fighting with my laptop.But still I am trying to be on positive path because I have done something ,which I haven't done for almost two years.I Cooked Lunch.By cook I don't mean a subway sandwich. But I cooked a real meal ...  :).

Yesterday I didn't think about it that much.But last night while I was trying to sleep.I went through all the cooking  process. I handle boiled water like I have done this for so many years, There were no worries.I didn't burn chicken or my self  and took it out of the oven.So when I look back at it now.It was quite a successful day :) .So the computer problem didn't go on my bad nerves.Lets see what today will bring me.

Everyone Stay Happy & Enjoy Your Sunday

Saturday, April 10, 2010

British Columbia Liberation

Yesterday history was made in BC.
The first Liberation Treatment was performed in British Columbia. Possibly it could be one of the first ones performed in Canada.Finally things are actually starting to move. It's become a reality. After having so many people tested for CCSVI, and blood flow problems have been clearly documented, a giant step forward was made in BC on April 9 2010.I hope further details will become "official" but so far the patient has had a remarkable improvement within hours. Their hands have warmed up. The numbness in their fingers has disappeared and for the first time in many years, they are now able to lay flat on their back pain free.This is a giant step forward, and the ripple effect will be massive, which in my book is completely awesome.I hope more details can be made public soon.

10 th April 2010

Hi  Everyone,

 I hope all of you are enjoying your weekend, today I feel great and here it's  such a nice sunshine out side and that makes me wonder, that I am so blessed.Often we people wants miracles no matter which religion or back- ground we have,time to time the miracle looks so fare away or impossible,but I believe its there near us we should just reach out for it. since my liberation, I have had so many good feelings most physically but today i want to tell you all what liberation gave to me mentally.I love to take a walk in parks summer nights after rain than the fragrant of fresh grass, clear night with a lot of stars, feelings of cold grass under my feet, its a awesome felling, I miss that so much , and i believe i can do that soon.That gives me so much adrelin a unknown power which I had not felt fore a long time. so what i want to tell you all is that this liberation also do differences in your mind, and gives you  faith and hope back.

So stay happy and enjoy life because there is so much about life that we need to know and the only way we  can  know more is if we allow our self to reach out fore the miracle,have faith and hope....I believe that everything happens for a reason and nothing is impossible, we just need to work real hard fore it....I'm hopping that I can walk into a park in a summer night after rain, hopping fore the best not only for me but all ms'er, we are gonna fight this ugly ms back it has provoken us enough..... :)
everyone stay happy and enjoy life 

Friday, April 9, 2010

9th April 2010 - Liberation War - Avis Favro on Canada AM Fri.

Kuwait has become the first country in the world to offer a controversial treatment to all its patients with multiple sclerosis who have blocked veins in their necks.
CTV News has confirmed that Kuwait's minister of health has given interventional radiologists in the country the go-ahead to use the state-financed medical system to begin treating patients who have blocked veins and abnormal blood flow in their necks.
According to a theory proposed by University of Ferrara's Dr. Paolo Zamboni in Italy, and first broadcast on CTV's W5 last November, many patients with MS have blocked or narrowed veins in their necks and chests. He calls the condition CCSVI, or chronic cerebrospinal venous insufficiency.He theorizes that the blockage prevents blood from draining properly, sending it back to their brain, a problem that could contribute to the immune response that marks MS.The theory has generated a lot of interest in Kuwait, which has high rates of MS, particularly among women.In a telephone interview with CTV, Dr. Tariq Sinan, an intervention al radiologist and an associate professor at the Department of Radiology in the Faculty of Medicine at Kuwait University says the health ministry will allow radiologists to begin treating MS patients who have CCSVI, starting next week, as part of an ongoing study.
The Kuwait News Agency KUNA also reported the development, quoting the chairman of the standing committee for co-ordination of medical research at the ministry, Dr. Youssof Al-Nesf, as saying: "The presentation meets the legal, moral and scientific criterions specified by concerned organizations, including the World Health Organization."
The decision is based on research by a team headed by Sinan who studied 12 MS patients in March. All of them had CCSVI and were offered what Zamboni has dubbed the Liberation Treatment. The treatment is a vein version of angioplasty, in which a small balloon is inserted into a blocked vein to force it open.
(No stents were used in the procedures, a practice some doctors around the world have tried and one that Dr. Zamboni does not endorse.)..Sinan says all of the patients saw improvements in their MS symptoms, with some noticing "dramatic" results. "On one day, on March 3, we did three patients. Two had dramatic improvements on the table and started crying because they couldn't believe what they were feeling," Sinan reported. He says patients with more severe MS reported fewer improvements, but did notice feeling less stiffness and more energy. Those with less severe disease, reported up to 90 per cent improvements in their fatigue and numbness in their hands and leg."In one case, the patient couldn't see from one eye and started to be able to see," Sinan reported.Sinan said he's confident the results he saw were not the result of the "placebo effect," a phenomenon in which patients fool themselves into feeling better by an otherwise ineffective treatment."If this is a placebo effect and I have MS, I would want this placebo effect," Sinan said.
"It is amazing the kind of improvements the patients say they have. It cannot all be attributed to placebo. Not being able to see and then being able to see, better bladder control, end of foot drop -- that cannot be placebo."Last week, Dr. Sinan says a group of neurologists petitioned the country's ministry of health to stop the treatments. Their concerns – shared by other MS specialists around the world -- is that the link between blocked veins and MS has not been proven, and that the treatment could be dangerous. They have called for more studies.But after review, and submissions from physicians and patients, the decision was to allow the treatments, which will be covered by the state-financed medical system.The procedure will not be performed to treat MS per se but to treat only "improper blood flow" in the veins."So we say this is a vascular problem in the neck. Patients, when you dilate the veins, they feel better. We don't have to talk about MS or the link to MS," said Sinan.Patients will be warned that the procedure is experimental, and the potential risks of venoplasty will be detailed in consent forms. Patients who agree to treatment will be part of an ongoing study that will be done in cooperation with a Kuwait neurologist.
The team will use ultrasounds and magnetic resonance venograms to scan the neck veins, as well as MRIs to track changes in the brain, including the appearance of MS-related lesions.
Doctors hope to treat 10 Kuwaiti patients a week, beginning next week.

9th April 2010

Hello Everyone,

Today was my last injection day.So Hurry for me :D  ..............  I know alot of you wants to know how it's goin?
So here it goes.... My body is  easier to handle right now,specially my legs. I can easily stand-up and brush my teeth without losing any balance or wheel-chair support.... Even though I have not started my physiotherapy yet.
I can move out of the bed very easily. Hand shaking is  decreasing day by day,and I control my Bladder much better then before.All the red buds are gone. So that's Hehehehehehe  :D  ... From tomorrow I should start taking one polo-card  once in a day. I love this liberated life which Dr. Kostecki has given me.

" Everyone Stay hopeful, Stay happy & Enjoy life because it's Sooo Beautiful. "

Thursday, April 8, 2010

4th April 2010

Nooooo I got red buds all over my body  and  I look like a tomato.I also got fever. I called doctor in Poland, he asked me to send an MMS with the picture of the buds, I did and called him again, he told me that my body probably had allergy to Ticlo. I should stop both the piles and continue with the Clexane the injection. And I should eat calcium piles. In the afternoon it looked much worse so I called the doctor in Denmark; he told me the same and suggested that I took some Sandoz piles which help allergy.
I did take both the piles and slowly some differences showed up.

31st March 2010

 Liberation is the light in the end of tunnel, the voice of freedom; it’s getting a new chance, who wants to miss the new chance?  I am a bit weak after the trip so I will take it easy the next couple of day, the Easter  break starts from tomorrow, so it will be a lot of friends and family over, the girls are coming tonight, I don’t think I will have any time to write  in the journal, but  Liberated Mona will be back…………

30th March 2010

Today i am leaving back for home, but before that we will see an old church in Krakow square.
Peter came for all of us at 09:00am  in the hotel,Phoebe and Chris to airport, me and mom had a couple of hours.We went to the square in Krakow oh my god it was so beautiful, the church was built in Mid 1700, I could not get my eyes of anything there, and outside the church in the square we bought some small souvenirs, than on our way to airport.
I have so much more energy and I can control my bladder much better, I got a bit of Mona back, I know it will need real hard work to be back, but on the other hand I ‘am sure it will happen the liberation is wow when I feel so good after 4 days than how good will I feel after 4 months?

29th March 2010

Today we went shopping in a big mall, Me, Mom,Phoebe, Chris and Peter, there it was again my all time favourite tweedy handbag it was blinking at me, calling my name I know I should not buy it because it’s so expensive, but I want it, there for I made a deal with myself actually" I want to use the tweedy bag as a inspiration to get off with the wheelchair,  so when I am back in 3 months for the check up , if I can walk into the mall and into the shop than I can get myself that tweedy bag as a reword". I am crossing fingers.
Tonight it will be our last night in Poland. so we are all going to have dinner together, it’s a weird felling we have experience such a big thing together and tomorrow we should say goodbye, this kind of experience bring people so close, we had such a lovely dinner together a lot of teasing and smiling.

Wednesday, April 7, 2010

28th March 2010

I feel so good,I can feel the blood flow in my body, I know this is what I needed. Why is there so many questions about this liberation?
 I am back at the hotel. Doctor been so well in explaining, told us it will be better to get a check up in 3 months to be sure.when I reached the hotel I had a big lunch than some rest when I woke up I had bleeded a little bit the place I had my surgery, mom got all nervous and called dr. kocteki he was in the hotel 15 min after my moms call, (that’s what I call carrying for the human) ....There was nothing to worry about, he asked me to stop the ticlo and polocard…Until I was back to DK.
I slept the rest of Sunday .It was such a nice nap.

27th March 2010

Today is the day I am going to be a liberated woman  :) .Peter is going to pick us up in the hotel and no breakfast for me because of the surgery.
At 08:15am , we arirrive to the Poliske - Amerykanskie kiliniki serca in Tychy me and Phoebe are gonne share the same room I will be nr.3, much weird I am not nervous at all I trust dr. kostecki so much and the best Polish vein sergeant is there too, I am all good but the time is passing very slow.
At 12:45 its my turn it will take around 1 hour, but I was done just after 50 min yesssssssssssssssssssss :D . I am liberated, I feel good after a couple of hours my feet gets there old colour back (light pink), and my hands dosent shake as much, I can hold a cup of tee.

24th March 2010

Today is my MRV scan in a city near Tychy around 45 Min away, I am not nervous any-more about anything not even the CCSVI treatment, I feel so relax here everything is so well organized.Peter is here to drive  me and mom, actually he is much more than like a good friend now, talk good English, not a lot of people here talks in English, so it’s awesome to have him around much helpful..The MRV takes around 40 Min after that I should relax until Saturday 27th  March 2010  for my surgery.

23rd March 2010

23rd of March 2010:

I could not get any sleep last night. I was so excited because i had a question in my mind , Do i need any Surgery?We
( Me & Mom ) checked into Hotel Arena , In Tyche . The travel agency had sent Peter to pick-up me and Mom from the Airport.There was one hour drive from Airport to the Hotel. Now i was in the hotel & i was " One Step Closer to Take a Step" . I Decided to rest two hours Before I needed to go to the Ultra-Scan.

Peter came back to drive us to the hospital. Another lady is coming with us. Her name is Phoebe , She is from United Kingdom. I had sent her a report about CCSVI almost a month ago. Here We Are, Sharing the same Cap to meet Dr. Jacek Kostecki for the very first time.The man which will change my life and give me my freedom back.

Every one is so nice here in Poland. Before Dr. Kosctecki i need to visit a neurologist . He asked me several questions, which were asked by several neurologists from the past Six Years.I really didn't care what the neurologists was saying. I am just interested to know,If i have any blocked Vein.The minutes were like long hours for me. Finally Dr. Jacek kostecki called me IN. Literally my heart was jumping out of my body. Me & Mom went inside and shake hands. We exchange some polite words.This was as nice as i heard him on the phone until now. He asked me to lay-down,to start the scanning. I wait for the news so, I can start sucking life back into my cold shaking body.This man is so quite , Please say something because I can hear my own heart beat.And then I could not wait any-more,I have to ask him.So here i go with a shaking voice. Doctor, Do I need a Surgery? He start by saying this " Yes you do" .. Rest i didn't hear because I just needed that " YES " .